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CARRA registry


Title Observational Study for Pediatric Rheumatic Disease: The CARRA Registry Study
Therapeutic Area Rheumatologic Conditions
Principal Investigator Diana Milojevic, MD
Max Age 21 Years
Gender Both
Contact Bipin Malla
617 636-4285
More Information https://clinicaltrials.gov/ct2/show/NCT01697254

Overview

The goal of this study is to longitudinally gather information on the outcomes in all pediatric rheumatology patients in the USA. The study will be enrolling patients with the following diagnosis: Juvenile Ankylosing Spondylitis, Juvenile Idiopathic Arthritis Probably Systemic Juvenile Idiopathic Arthritis (sJIA), systemic lupus erythematosus, juvenile dermatomyositis, localized scleroderma, mixed connective tissue disease, vasculitis, uveitis, fibromyalgia, systemic sclerosis, sarcoidosis, and sjogren syndrome.

Study Details

Inclusion Criteria

  • Children with diagnosis of Juvenile Idiopathic Arthritis who are diagnosed before age 16 years.
  • Children who are diagnosed with Systemic Lupus Erythematosus within past 2 years.

Exclusion Criteria

  • None

Study Requirements

Study visits are completed during routine clinic appointments every 6 months or every 3 months depending upon the study disease subgroup. There is no blood collection for the study. Participants just have to fill out disease specific questionnaires. Examination findings along with the data from the questionnaires are recorded in the database. These data are used in future research in the field oaf Pediatric Rheumatology to advance the knowledge regarding the disease and its treatment.