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Exercise and Lifestyle for Hypertrophic Cardiomyopathy and Long QT Syndrome


Title Exercise in Genetic Cardiovascular Conditions (Lifestyle and Exercise in Hypertrophic Cardiomyopathy "LIVE-HCM"/Lifestyle and Exercise in the Long QT Syndrome "LIVE-LQTS")
Therapeutic Area Hypertrophic Cardiomyopathy, Long QT Syndrome
Principal Investigator Martin Maron, MD
Min Age 18 Years
Max Age 60 Years
Gender All
Contact Nathan Yuen
617 636-4990
More Information https://clinicaltrials.gov/ct2/show/NCT02549664

Overview

The goal is to determine how lifestyle and exercise impact the well-being of individuals with hypertrophic cardiomyopathy (HCM and long QT syndrome (LQTS)

Study Details

Inclusion Criteria

  • Individuals with Hypertrophic Cardiomyopathy or Long QT Syndrome

Exclusion Criteria

  • Individuals with Hyperthrophic Cardiomyopathy with systolic or diastolic heart failure which preclude vigorous exercise will not e enrolled (NYHA III/IV)

Study Requirements

Participants will receive a Fitbit (pedometer) and will war it ini9tially for two weeks and then one week every three months. The Fitbit is used for assessment of exercise level only. Clinical records will be obtained from treating physicians. Participants will also be asked to call the central site if they experiences syncope, appropriate ICD (implantable cardioverter defibrillator) shock , or resuscitated arrest. Information regarding the patient's activity at the time of event will then be obtained by phone interview.