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“A loss of sight is not a loss in vision.”

Nick is described by all who know him as a true inspiration and the very personification of courage. His journey with cancer began when he was just nine years old.

After suddenly and permanently losing his sight as a result of a brain tumor that crushed his optic nerve, Nick was diagnosed with an extremely rare tumor called choroid plexus papalloma. After his tumors were surgically removed, Nick embraced his reality and immersed himself in learning opportunities with the goal of becoming famous. 

With his mantra “A loss of sight is not a loss in vision,” Nick challenges us all to embrace life fully, no matter the circumstances. While working toward his goal of fame, Nick has accomplished several other notable achievements: learning Braille in less than one year, maintaining straight A’s in elementary school, earning an “Outstanding Student Award” upon graduation, landing the lead role in his most recent school play and learning to downhill ski.  

The discovery of three additional tumors in July 2012 brought him to Floating Hospital for Children’s Division of Pediatric Hematology/Oncology for a rigorous treatment regimen that included seven rounds chemotherapy and five weeks of radiation. As part of a trial protocol, Nick received chemotherapy injected directly into a port in his brain as well as intravenously to treat his whole central nervous system. Despite that, his contagious positivism in the face of adversity and his genuine passion for embracing the richness of each day is unwavering.

In 2013, at the age of 12, Nick was awarded with the Cam Neely Award for Courage at Working Wonders for Tufts Medical Center. The Cam Neely Award for Courage, named for the NHL Hall of Famer, President of the Boston Bruins and Founder of The Cam Neely Foundation for Cancer Care, honors individuals who courageously battle cancer or other serious diseases and caregivers who have selflessly provided comfort to those with such illnesses. Nick indeed embodies the spirit of the Cam Neely Award for Courage and provides powerful motivation for those who face adversity.



Today, Nick continues to excel at all he does, including being elected President of the National Junior Honor Society at his school.

While his tumors have shrunk to the point he’s being weaned off medications, his oncologist Giannoula Klement, MD in the Division of Pediatric Hematology/Oncology will continue to follow monitor him.
 
The compassionate and leading-edge care Nick has received was made possible thanks in part to the generosity of donors. Philanthropy to Floating Hospital for Children helps provide the most advanced and personal medical care available. 

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