The Hypertrophic Cardiomyopathy (HCM) Center and Research Institute at Tufts Medical Center is the largest, oldest and most experienced multi-disciplinary HCM program in Boston, the eastern United States, and one of only a few in the world.
Patients should know HCM is a disease that is compatible with normal longevity. In terms of the overall risks of living, conveys far less of a risk than other cardiac diseases like congestive heart failure (by 20-fold), myocardial infarction (by 10-fold) and virtually any cancer (by 35-fold).
We are a premier referral and treatment center for HCM, offering the complete spectrum of advanced diagnostic and therapeutic options, and were one of the first sites nationally to be designated as an HCM Center of Excellence—the highest rating given by the Hypertrophic Cardiomyopathy Association (HCMA).
Our most important goal is to provide all HCM patients and their family members the opportunity to achieve excellent quality of life. Our physicians and caregivers are HCM experts who are committed to clearly communicated care and empowering patients to make the best treatment decisions.
Mortality and HCM
Hypertrophic cardiomyopathy (HCM) is a relatively common genetic heart disease that has been encumbered throughout much of its history by large amounts of misunderstanding as well as the perception that it has a grim outcome and lacks effective treatment options. Many patients with HCM mistakenly consider their diagnosis to be among the least favorable they could confront.
However, it is now apparent the majority of affected HCM patients can achieve normal or near-normal life expectancy without disability, and usually do not require major treatment interventions. For those HCM patients who are at risk for (or experience) disease-related complications, there are a constellation of comprehensive management strategies that have evolved over the last 15 years and altered the disease course for many. These clinical management initiatives provide many patients with reassurance and a reasonable expectation for extended (if not normal) longevity that exceeds that of many other non-cardiac diseases. See our figure.
The best of the best
You can rest easy, knowing you or your loved one with HCM will receive world-class care with us, including careful evaluation and treatment from our program’s leaders—top specialists in the HCM field:
Martin Maron, MD, Director, Hypertrophic Cardiomyopathy Center
Ethan Rowin, MD, Co-Director, Hypertrophic Cardiomyopathy Center
Leading the charge
Our experienced, expert cardiothoracic surgeons perform more septal myectomy procedures than most US hospitals. Our interventional cardiologists were the first in New England to perform alcohol septal ablation. Both of these treatments are used to successfully relieve heart failure symptoms in patients with obstructive HCM. Our electrophysiologists are world leaders in HCM arrhythmia management, including sudden death prevention via implantable cardioverter defibrillators (ICDs) and atrial fibrillation treatment through drug therapy and ablation.
Our team is dedicated to continued research initiatives focused on improving treatment options, outcomes and the overall understanding of HCM. We provided major contributions toward the advancement of the contemporary HCM treatment worldwide with our work on implantable ICDs
to prevent sudden death, cardiac MRIs
for diagnosis and prognosis, and the treatment of limiting symptoms due to outflow tract obstruction, with surgical myectomy and alcohol ablation.
We never stop working for you
Our first mission is to help you and your family live life to the fullest by providing a better understanding of HCM and discussing various treatment options. Though there is no known cure for HCM, we are active in continuously researching and exploring innovative treatment options to decrease heart scarring, improve symptoms, and prevent adverse consequences of this genetic heart disease.
What is an HCM Center of Excellence?
An HCM Center of Excellence is a multi-disciplinary program staffed by cardiologists and cardiac surgeons who are clinical experts and scientific leaders in the diagnosis and management of HCM—providing patients with state-of-the art care and the most advanced diagnostic and treatment options.
An HCM Center of Excellence also has a strong commitment to the research of HCM, including:
We work in partnership with your local cardiologist and referring physicians to provide you and your family seamless care.
Distributed Academic Medical Center
In 2014, we established a partnership with Morristown Medical Center in New Jersey in order to extend our unique HCM expertise regionally. Patients local to New Jersey can now be seen by our specialists close to their homes at the Mast HCM Center and have direct access to the expertise of Tufts Medical Center’s leading heart surgeons Drs. Hassan Rastegar and Carey Kimmelstiel should they need advanced procedures.
Thank you for choosing the Hypertrophic Cardiomyopathy Center at Tufts Medical Center in downtown Boston, MA. We look forward to meeting you.