Hypertrophic Cardiomyopathy Center and Research Institute
National HCM Guidelines
The 2011 (and current) American College of Cardiology / American Heart Association Guideline for the management of hypertrophic cardiomyopathy guides practices for this disease. These extensive and detailed recommendations were formulated for cardiovascular communities in the HCM Center in collaboration with other U.S. experts. Barry J. Maron, MD serves as a Co-Chair and James E. Udelson, MD as a primary author.
Direct patient education
A strength of the HCM Center is the relationships we create and build with each and every patient. You will receive the most up-to-date information about this disease in the popular book written for patients, “A Guide To Hypertrophic Cardiomyopathy." For Patients, Their Families and Interested Physicians”, written byDr. Barry Maron with Lisa Salberg, Founder of the patient advocacy Hypertrophic Cardiomyopathy Association (HCMA). This is particularly important since there remains so much misunderstanding about HCM in the community and a new diagnosis can be particularly intimidating.
The HCM Institute is a leader in HCM education. Every 3 years, we organize a unique international meeting that is dedicated to current research and knowledge about HCM, focused on the most effective treatment strategies available today. The next such meeting is being held October 16-18, 2020 at the Seaport Hotel in Boston, titled “International HCM Summit VI: Hypertrophic Cardiomyopathy—A Contemporary and Treatable Genetic Disease: Moving Towards a Cure".
With 300 attendees from 25 countries and 30 U.S. states, this meeting will result in important interactions and transmittal of relevant clinical information between the faculty, investigators, and registrants.